LATEST ARTICLES

I’m 1 year and almost 5 months post-transplant.  It’s been night and day the amount of progress I’ve felt in the last 5 months. June Highlights After living with me for the last 1.5 years...

Happy belated transplant birthday to me! I made it to my one year mark – 5/29. It’s crazy to me that I’ve made it this far. Just 6 months ago I was bedridden and kind of regretting what...

Highlights While I’m still on a lot of medications, I’m off two of my steroids (beclomethasone and budesonide), and we started tapering a third immunosuppressant, tacrolimus. I started...

Highlights I’ve stopped IVIG! I have been getting IVIG every 3 to 4 weeks since 2001. I was supposed to get a dose on March 3rd and March 24th, so this is the first time in 24 years that I’ve...

Highlights I struggled with writing this month’s recap, not because I haven’t made progress, but because I thought I would have continued improvement this month like I did the last few months,...

The Lunar Near Year on the 29th happened to fall on my 8 month-iversary and just in time for my January recap! Highlights I feel like I’ve made a lot of progress health wise but I also recognize...