Highlights While I’m still on a lot of medications, I’m off two of my steroids (beclomethasone and budesonide), and we started tapering a third immunosuppressant, tacrolimus. I started to have...

Highlights I’ve stopped IVIG! I have been getting IVIG every 3 to 4 weeks since 2001. I was supposed to get a dose on March 3rd and March 24th, so this is the first time in 24 years that I’ve...

Highlights I struggled with writing this month’s recap, not because I haven’t made progress, but because I thought I would have continued improvement this month like I did the last few months,...

The Lunar Near Year on the 29th happened to fall on my 8 month-iversary and just in time for my January recap! Highlights I feel like I’ve made a lot of progress health wise but I also recognize...

December Recap & Reflections December was pretty uneventful in terms of health scares, and that is the best news ever! Boring is amazing in my book, at least for this year! It appears that my B and...

November Recap: I made it to half a year! November was a month of a lot of rest. Now that it gets dark around 4:30 PM PST, it really gives me a good excuse to just not do anything! 10/29 11/6 11/13 11/19...